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Jonny Lee Miller Gives Rare Disease Patients A Voice On Capitol Hill

Jonny Lee Miller Gives Rare Disease Patients A Voice On Capitol Hill

by The Daily Eye Team March 1 2014, 12:54 pm Estimated Reading Time: 0 mins, 34 secs

Jonny Lee Miller, who stars as Sherlock Holmes in the CBS hit TV show Elementary, is headed to Capitol Hill today – Thursday, February 27 – to speak at the Rare Disease Congressional Caucus briefing about the need to spur the development of lifesaving treatments for rare disease patients. The briefing, entitled “Science Behind Rare Disease Policy,” is sponsored by Shire & Genzyme. It is a part of a full week of events on Capitol Hill hosted by the Rare Disease Legislative Advocates (RDLA) in celebration of international Rare Disease Day. Miller will be joined by more than 150 patients and parent advocates representing more than 80 different rare diseases.

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